About this campaign
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Rare Connection is about to hit its 3rd anniversary. On June 17th. Currently there are 76 episodes up. The video version is on my YouTube channel Rare_Chef. The video version includes visual proof in most episodes (patients are better at this than professionals. Audio version is on Spotify, Apple Podcasts, YouTube, Amazon Music, podcast index, IHeartRadio, Podcast Addict, Podchaser, Pocket Casts, Listen Notes, Player FM, Overcast, Castro, Castbox, Good Pods and True Fans. Patients have lived experience, Doctors have book knowledge. Doctors aren't required to go back to school, and rare diseases are a paragraph in a textbook. 30 million people live with 1 of over 10,000 rare diseases. It can take an average of 7 years to get a diagnosis because doctors will always test for the common conditions first. Many conditions also look alike, so misdiagnosis is common. Many doctors don't look far enough to give the correct diagnosis and misdiagnosis can kill.
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